Tag Archives: Spoonie

Another overdue update!

Hello world, It has been awhile, no? Yes, yes it has. I know I promised an update a while ago, but life has been so up and down and my fatigue is unreal lately. After a full day of work and hammering some school stuff, I have 0 energy. But where should I begin? IContinueContinue reading “Another overdue update!”

#LOVEISLOUDER

This entire month is Mental Health Awareness month. As I am sure many of you know, I am a huge advocate for mental health. I suffer from some mental health problems myself, I know people close to me who do, and I work with people who do. It’s really a big part of my lifeContinueContinue reading “#LOVEISLOUDER”

Embracing Change

First off I would like to say thank you. I felt terrible for the lack of updating my blog (which I will explain in a bit) and pondered if it was worth continuing to write in this blog. Although a part of me started this blog to help myself during this journey, I also startedContinueContinue reading “Embracing Change”

Sorry not Sorry- Being Unapologetic

I’m sure anyone with a chronic illness has been there. Where you find yourself apologizing for everything and excusing yourself for things that are usually out of your control. I find especially with invisible illnesses, it’s a lot trickier to tread around this. By definition I have a disability. Do I look like it? No?ContinueContinue reading “Sorry not Sorry- Being Unapologetic”

When it all comes tumbling down part 2

Hello world, These past two weeks have been a whirl wind. If you follow my instagram account you probably already know. If you don’t well: My ulcerative colitis was getting worse again so we are now on treatment #6I got in a car accident Let’s start with the car accident. Life happens so fast! IContinueContinue reading “When it all comes tumbling down part 2”

It’s my birthday & I’ll cry if I want to

So apparently it’s been exactly a month! Time flies when you have 0 energy and motivation for things. I have honestly been meaning to get around to this. It’s just been an ass kicking battle. Where do I start? Well for one, I was almost done my prednisone pills when I decided to adventure offContinueContinue reading “It’s my birthday & I’ll cry if I want to”

Getting Caught in the “What if’s”

I saw my doctor yesterday for my usual monthly follow up. We are down to 7.5 mg of Prednisone and I finally got the okay to continue weaning off them. We seem to be teetering on this point where I am not quite sick but not quite better. So he kind of just threw hisContinueContinue reading “Getting Caught in the “What if’s””

Happy 1 Year to Me

Well, today is officially the day where one year ago I underwent a colonoscopy and was officially diagnosed. Although I made a post not that long ago about first being sick, your diagnosis date is a pretty monumental day. There is no more “it could be this, or this, or this” “Let’s hope it’s justContinueContinue reading “Happy 1 Year to Me”