As my journey to remission seems to becoming closer, I started to wonder about the future. Will I be symptom free? What does remission feel like? How long will it last? But most importantly, what is a flare up? Because often people who go into remission talk about having flare ups. I have used this… Continue reading What is a flare up?
Well the day has come and passed and we have lived to tell the tale of yet another colonoscopy- except this time it was a sigmoidoscopy. While they tell you that the prep for a sigmoidoscopy is much easier- I beg to differ and actually asked for the colonoscopy prep. That enema fleet they give… Continue reading Clinical Trial Series: Week 16
Ah Prednisone, The pill that most people end up on when you have a chronic illness, the pill that really does work some wonders, but ALWAYS has side effects. This has been the longest I've been on prednisone consecutively. Normally I am able to start weaning off of it after 2 weeks, but because of… Continue reading Things you should do if you are on Prednisone
Hello friends, Spring break has finally made it's presence and I couldn't be happier. While I am not whisking away on a fancy vacation, I will be going to the mountains for a day and sleeping in EVERYDAY, which is the best freaking thing ever for someone who is chronically tired. But I wanted to… Continue reading I got to be a guest on a blog!
YOU GUYS I was too excited not to update you about today even though I feel like ABSOLUTE trash. Today was the final week of phase 1 where we found out if I was on the drug, how my bowels were looking, and what the next step would be. First off, prep fucking sucks. I… Continue reading Clinical Trial Series: Week 8 Check in & Colonoscopy
Any time I come across someone new who asks about my story, it always surprises me with how many people are suddenly experts. They always have advice around new products to try, new diets to endure, or suggestions from who knows where. "Have you tried adding more lemon in your diet?" "It's all that gluten… Continue reading Be Careful With Advice
Hello friends! The day is quickly approaching (Tuesday) where I begin my clinical trials. As such, I thought it would be a good idea to create a series or thread specifically for the clinical trial where I talk abut my experience. I think it would be important because a) this is very likely a drug… Continue reading Clinical Trial Series: Intro