So apparently it’s been exactly a month! Time flies when you have 0 energy and motivation for things.
I have honestly been meaning to get around to this. It’s just been an ass kicking battle.
Where do I start?
Well for one, I was almost done my prednisone pills when I decided to adventure off to Banff, Alberta. I figured a girls trip was exactly what I needed to get my mind off of things and I hadn’t been on my snowboard the entire season. The drive up was fine and I was able to make it just fine our first night there. I figured I was in the clear! But the next morning I awoke to this terrible nausea that would not shake off. The whole ride up to Lake Louise I just wanted to hurl. We got there around 10:30 am and I wasn’t able to get on the hill until two hours later. Even then I felt like I was taking a risk. It was a busy hill and I had a lot of clothing on, I don’t think I am that fast at stripping myself down to go to the washroom and I certainly wasn’t down to pop a squat in a little barren section of “forest” that was really just 5 or 6 trees next to each other. I stayed on the bunny hill the entire time and was absolutely exhausted after my 6th run.
BUT, my body was just fine going out for dinner and going out that night… of course. I also survived the hike the next morning. So I figured it was just a freak isolated incident and would go away.
Well, I was dead wrong. Since that day I have been experiencing nausea every single day, every time I go to the washroom. And it just seems to be progressively getting worse. Last week I took a day and a half of of work due to my nausea and fatigue.
But the following weekend was my 24th birthday. Woo-hoo. I think I spent more of that weekend crying more than anything.
Being off prednisone makes you extra emotional FYI.
It started off with my lovely boyfriend decorating his entire house for me with a banner, streamers everywhere and balloons filling the living room and dinning area. When I had first entered the house with 3 bags in my hand and a dog on a leash (because I don’t believe in doing more than one trip, should maybe reconsider….) I had fallen back while my dog and his dog wrestled each other right at the front entrance causing me to break his door….. cool. Great. Then we recieved a letter from the insurance company back when we had to cancel our Mexico trip. After months of waiting (this was the end of August) they had decided they owed us nothing because I had a pre-existing condition and had not be in remission for 90 days. I’m sure it took a lot of seething through my medical files to find enough evidence of this because they called every doctor I have. So that was $1200 I lost and $1200 by boyfriend lost simply because he was associated with me. I completely broke down. I just broke his door and now burned a hole in his pockets and he decorated his house for me and wanted to make my day special.
And what scared me the most was that this was going to be the rest of our lives. We would always have to read the fine print on things to make sure I was covered. We would have to reconsider things. We would be denied and turned away from certain things because I am sick. Something that is beyond my control, yet I am being punished for.
But he managed to calm me down and we still had a lovely evening. My mom and brother also took me to this amazing little French cafe for brunch and the food was amazing, but nausea got the better of me and I couldn’t quite finish it. It seemed to carry on for the rest of the day as well. But my family was amazing, and despite wanting to cry and just be mopey, they were able to put a smile on my face.
My birthday ended up being a 3 week celebration really, starting with Banff, then a celebration with my family, and ending with the following weekend where my work went out to celebrate mine and a co-workers birthday. I was down to half a pill at that point and could really feel it kicking in. By 9pm I was ready for bed. Seriously. Alcohol and exhaustion do not mix pretty. The next morning I woke up feeling fine and was excited that maybe finally, for once, my body was going to cooperate. I was prednisone free that day as well! Well 5:30pm rolled around and as I was getting ready for my dinner with friends my bowels just revolted. I managed to run to the washroom twice in the 10 minutes it took for the uber to arrive. On the ride to the restaurant I was not sure if I was going to puke or shit all over this poor man’s car.
As soon as I got there I bolted to the washroom, just making it in time. I was shaking. My body was hot and then cold. As I hunched over sitting on the toilet I just bawled. I wasn’t sure how long I could do this. My body was so unpredictable. Nothing seemed to agree with me. I loathed my body. I tried to keep my composure, but my friends knew something was off. As soon as I made my way around to say hello to everyone, eventually I just broke down in front of the table AND the entire restaurant as my best friend asked if I was okay.
I was not. I felt ill, I was tired of everything and just tired, and I hated myself. Great start to 24. But I took a deep breath, moved along, and forced myself to enjoy the night even though I ran to the washroom another 3 times after that.
It’s been a long couple of weeks. I am feeling a little more sick day by day, but my symptoms are all over the place. Some days I am just tired, other days my joint pain is unbelievable, and other times my head aches are unbearable. One consistency is being gasy and nauseous. A really cute combo.
So here we are. Awaiting to hear my doctors opinions this Thursday and just trying to get through until next Monday with my next Entyvio infusion. I am back to doing it every 4 weeks for now! I mean it’s not really a good thing because it means that I am still pretty sick, but the though of waiting 8 weeks made me feel sick with nerves.
So thats basically my life the last month. Well I mean there was work, and school, and other things. But those were the big things. I am looking to go down to part-time work since school, full time work, and trying to get better is becoming too much for me. So fingers crossed we find something ! For now I’m still full-time.
Until next time!