Well friends, we got the flu

Ah flu season, the time of year no one likes. Especially people with autoimmune disorders. Last year your girl was on top of it and got her flu sit early, managing to overall miss flu season. This year, your girl was lazy and kept putting it off and Karma bit her in the ass. NowContinue reading “Well friends, we got the flu”

Hello, It’s Me

Well hello world, it has been a long long time since we have ventured over here to this blog. I made it back from Europe, I do promise you that. I’m really sorry I was away from here for so long. Life just kind of got away from me. Europe was a whirl wind andContinue reading “Hello, It’s Me”

I’m going to Europe!

Guys this month has been so hectic. Last month of school for kids is always a gong show, meaning long days and energy levels next to nothing. But we got through it all and on top of it all successfully weaned off of prednisone! It’s been officially three weeks and I haven’t regressed. This drugContinue reading “I’m going to Europe!”

What is a flare up?

As my journey to remission seems to becoming closer, I started to wonder about the future. Will I be symptom free? What does remission feel like? How long will it last? But most importantly, what is a flare up? Because often people who go into remission talk about having flare ups. I have used thisContinue reading “What is a flare up?”

Things you should do if you are on Prednisone

Ah Prednisone, The pill that most people end up on when you have a chronic illness, the pill that really does work some wonders, but ALWAYS has side effects. This has been the longest I’ve been on prednisone consecutively. Normally I am able to start weaning off of it after 2 weeks, but because ofContinue reading “Things you should do if you are on Prednisone”

Tales from a shower cry session

Two posts in one week, I’m getting a little wild here. But jokes aside, I had a lot of my mind and just feel the need to get it off my chest. Keep in mind, I am super emotionally charged today, so this post may end up not really making sense or having an exactContinue reading “Tales from a shower cry session”

All we need is a little love

YOU GUYS. I have been a little M.I.A hey? So many things have been happening and for once all of them exciting and good. The clinical trial seems to be going well. I even had moments were I didn’t poop for over 24 hours. It was the craziest feeling. The first time it happened IContinue reading “All we need is a little love”

Clinical Trial Series: Week 8 Check in & Colonoscopy

YOU GUYS I was too excited not to update you about today even though I feel like ABSOLUTE trash. Today was the final week of phase 1 where we found out if I was on the drug, how my bowels were looking, and what the next step would be. First off, prep fucking sucks. IContinue reading “Clinical Trial Series: Week 8 Check in & Colonoscopy”