The time my UC caused me to go to the hospital

To start I am back home and hopefully FINALLY on the road to recovery. And my first experience going to the hospital as a result of my disease was probably a lot easier compared to other people. But let rewind to a week and a bit ago. I decided to take a leave of absenceContinue reading “The time my UC caused me to go to the hospital”

A Letter to Myself

Dear Body, At first I was going to write a love letter to you, but as the weeks went by and things got worse I realized, that perhaps dear body we needed to step up our game. Perhaps I needed to write a negotiation letter. See, you kind of have my body under hostage andContinue reading “A Letter to Myself”

How Stress Effects Your Chronic Illness

So apparently I have been terrible at managing my stress levels lately, despite the self-care I have been trying to do. How so, you may ask? Well after talking to my nurse practitioner, it was discovered that my jaw pain had nothing to do with my medication and everything to do with stress (and myContinue reading “How Stress Effects Your Chronic Illness”

The Downsides & Upsides

This will be an update post on my progress so far. It’s officially been a week since my loading dose of Humira and we are now officially down to 20 mg of Prednisone (I’m halfway there). I start going down 0.5 mg each week for Prednisone and then this coming Saturday I take 80 mgContinue reading “The Downsides & Upsides”

The Best Way to Practice Self-Care

For anyone who knows me personally, you would know I lead a pretty stressful life. My job involves running Early Childhood Development programs where I work with families from all different backgrounds to provide intervention & prevention services, I teach an anger management program , I volunteer at the Sexual Assault Center, I provide earlyContinue reading “The Best Way to Practice Self-Care”

When Shit Gets Tough (Literally & Figuratively)

I’ve been M.I.A. for a bit and I was working on a different post, but honestly this last week has been tough. I’m rejecting Mezevant. I’ve been fighting head aches on and off since I started, but headaches aren’t unusual for me. My redflags were more that I felt like I was getting worse notContinue reading “When Shit Gets Tough (Literally & Figuratively)”

Starting Over

This mostly is going to be more mushy and feely because this time I want to focus on mentally what I’m going through. People keep saying “you’re so strong and so positive. Keep it up.” and I always kind of stare in bewilderment. Me? Strong? Maybe positive, but I don’t know about strong. I cryContinue reading “Starting Over”

Treatments

I think today will be a two post kind of day. First up: Treatment plan as I had promised So, remember my last post how I talked about missing my old life? Well LIFE would have it that, that would be the same night where I would react badly to a medication I’m on and projectileContinue reading “Treatments”