To start I am back home and hopefully FINALLY on the road to recovery. And my first experience going to the hospital as a result of my disease was probably a lot easier compared to other people. But let rewind to a week and a bit ago. I decided to take a leave of absenceContinueContinue reading “The time my UC caused me to go to the hospital”
Tag Archives: Spoonie
Admitting I’m Scared
This week seems to be my breaking point. I am now down to 0.5 pills of Prednisone so 2.5 mg and my body hates it. On top of that I can’t seem to get out of this current active flare and I’m worried weekly Humira is showing signs of not being enough. My body isContinueContinue reading “Admitting I’m Scared”
Things I Wish People Understood About IBD Part 2
Happy IBD Awareness Day! In honor of further raising awareness I thought I would do another one of these posts. This of course is all from my personal experience and can be different for everyone, but hopefully some of you can relate and have a laugh! When I say I have to go, I needContinueContinue reading “Things I Wish People Understood About IBD Part 2”
A Letter to Myself
Dear Body, At first I was going to write a love letter to you, but as the weeks went by and things got worse I realized, that perhaps dear body we needed to step up our game. Perhaps I needed to write a negotiation letter. See, you kind of have my body under hostage andContinueContinue reading “A Letter to Myself”
Travelling with Humira: My Experience
Hello dear readers, I am back from vacation! And this time it really was a vacation (unlike Disney World, where I needed a vacation from that vacation). Canada Place, Vancouver I am so fortunate to have amazing and supportive friends who may not exactly know what I’m going through, but do try to understand andContinueContinue reading “Travelling with Humira: My Experience”
Prednisone & Humira just don’t like me
Hello dear readers, It’s been a week! This month I have definitely been slacking with the blog posts, which is a bummer because I have even planned my posts for the month, but unfortunately I didn’t really plan ahead at looking at my energy levels- which lately feels non-existent! My update: I have decided toContinueContinue reading “Prednisone & Humira just don’t like me”
How Stress Effects Your Chronic Illness
So apparently I have been terrible at managing my stress levels lately, despite the self-care I have been trying to do. How so, you may ask? Well after talking to my nurse practitioner, it was discovered that my jaw pain had nothing to do with my medication and everything to do with stress (and myContinueContinue reading “How Stress Effects Your Chronic Illness”
The Downsides & Upsides
This will be an update post on my progress so far. It’s officially been a week since my loading dose of Humira and we are now officially down to 20 mg of Prednisone (I’m halfway there). I start going down 0.5 mg each week for Prednisone and then this coming Saturday I take 80 mgContinueContinue reading “The Downsides & Upsides”
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