A Message to Anyone with Invisible Illnesses

I know lately I’ve been posting on here a lot less. I was a lot more motivated to write when I actually had energy and felt better than I am lately. I don’t think I realized how much this has all taken a toll on me until recently. I can nap anywhere at any timeContinue reading “A Message to Anyone with Invisible Illnesses”

Admitting I’m Scared

This week seems to be my breaking point. I am now down to 0.5 pills of Prednisone so 2.5 mg and my body hates it. On top of that I can’t seem to get out of this current active flare and I’m worried weekly Humira is showing signs of not being enough. My body isContinue reading “Admitting I’m Scared”

Things I Wish People Understood About IBD Part 2

Happy IBD Awareness Day! In honor of further raising awareness I thought I would do another one of these posts. This of course is all from my personal experience and can be different for everyone, but hopefully some of you can relate and have a laugh! When I say I have to go, I needContinue reading “Things I Wish People Understood About IBD Part 2”

A Letter to Myself

Dear Body, At first I was going to write a love letter to you, but as the weeks went by and things got worse I realized, that perhaps dear body we needed to step up our game. Perhaps I needed to write a negotiation letter. See, you kind of have my body under hostage andContinue reading “A Letter to Myself”

How Stress Effects Your Chronic Illness

So apparently I have been terrible at managing my stress levels lately, despite the self-care I have been trying to do. How so, you may ask? Well after talking to my nurse practitioner, it was discovered that my jaw pain had nothing to do with my medication and everything to do with stress (and myContinue reading “How Stress Effects Your Chronic Illness”

The Downsides & Upsides

This will be an update post on my progress so far. It’s officially been a week since my loading dose of Humira and we are now officially down to 20 mg of Prednisone (I’m halfway there). I start going down 0.5 mg each week for Prednisone and then this coming Saturday I take 80 mgContinue reading “The Downsides & Upsides”

When Anxiety Takes Over

Prednisone kicks some serious butt! I’m beginning to wonder if the evils outweigh the good at this point. Well, that’s not entirely true. I KNOW right now they do. I’m doing a lot better, but these new symptoms are really consuming me. Joint pains– never had it before and can definitely say I am notContinue reading “When Anxiety Takes Over”