Clinical Trial Series: Week 2 Check in

Week 2 was upon us friends and it seems to be good news. Based on my current symptoms we are PRETTY sure I am on the drug and not placebo.

I have definitely noticed a slow but noticeable change in my frequency of going. This is supposed to be one of the first few things that changes. But unfortunately this does come with some not so pleasant side effects as a result, which are also normal. This would be an increase in bloating and gas. Basically, it’s been so long since my body has been good, that it doesn’t understand how to be good even though it’s being forced to. We got so used to the cycle of frequently unloading, now that my body is forcing itself to hold my poop in longer and have less bowel movements in the day and my body is figuratively shouting “what the f-“. So its response is to swell like a little balloon with all my trapped gas and release said gas. It’s a very attractive time in my life right now.

My mucus levels have also increased, which is also normal. Mucus is created to help with bowel movements and again my body keeps trying to prepare to push out everything even though it won’t. So as a result I have urges to go, but only pass mucus. This along with my blood will be one of the last few things to change.

I don’t have spells where I am just passing blood, but I still bleed quite frequently. Hopefully in time this changes.

My fatigue is still very much there, same with joint pain (but prednisone also impacts this), and I do still get quite a few head aches. I also pee a lot, which is another known side effect around this time of the trial. Interested to see if this changes.

My overall mood has actually increased. I have been able to do more social things. Prior to the study, my worst times of days were early morning and after 7pm, so going out was hard. My body was just too unpredictable. Now we seem to have a steady schedule of going in the morning and around 3:30-4pm, but the evening one is not enough to completely wind me and take me out for the rest of the night like before. I was able to workout 3 times this week, go out, and no worry as much about washrooms. My anxiety as a result went down too. I could stress about other things (because apparently I just need to stress about something) like my upcoming assignments or work related stresses that are NORMAL.

So now in two more weeks we go back and review everything. This time around I had to do:

  • 6 stool samples (not impressed at 6:30 am to do this FTR. I understand that it comes with the territory, but like colonoscopies I will never get used to stool samples.)
  • Blood work
  • Urine sample
  • Questionnaires
  • Physical exam

And proud moment! I weigh 97 lbs! A good jump from late November when I was 89 lbs.

Taa taa for now,


Published by shitsandgiggleswithb

A 20 something university graduate who was recently diagnosed with Ulcerative Colitis. Follow me and my journey with this chronic illness.

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